Woman with rare disability avoids life-threatening deportation from the US

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When Isabel Bueso found out she was going to be deported to her native Guatemala in just 33 days she was devastated. Not only because it meant leaving the US, but because leaving would have meant a death sentence for her. Bueso has mucopolysaccharidoses, a rare genetic disorder for which she receives enzyme treatment in the US, but the treatment is unavailable in her home country. Rather than give up, she decided to fight back. "I have to speak up and say this is not right. This can't be happening and someone needs to hear this," she said. Her lawyer brought attention to her plight and that of others, and she spoke to Congress about it. Representative Mark DeSaulnier ended up introducing a bill that would stop Beuso and her immediate family’s deportation, but she will have to reapply for extended amnesty in a few years. 

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