Mobility Impairments

A group of people with various disabilities. Real People, Real stories, brought to you by The Paciello Group

Mark Miller, the host, and his colleague Todd Waites speak with Jeff Steinberg, an entertainer/ministry singer/speaker/author/motivational entertainer and ADA consultant. Jeff elaborates on how he likes to focus on positivity during his motivational speaking events, describing how optimism helped him through his challenging childhood. Todd opens up about becoming as a one-armed keyboard player and Jeff lets it slip how he likes to flaunt political correctness by standing up for himself as a person with a disability.

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In this episode:

Mark chats with Kevan Chandler, a non-profit founder, author, and adventurer to the core. They talk about Kevan’s non-profit, We Carry Kevan, which strives to encourage the dignity of individuals with disabilities and their support systems, acknowledging everyone’s unique potential. Kevan discusses his travels as “the human backpack” with his friends across Europe and China, and goes into detail about his books and what inspires him. He also discloses who he would be if he were a Teenage Mutant Ninja Turtle.

adeline Delp, former Ms. Wheelchair USA, was terrified to put herself out in the spotlight the first time she participated in a beauty pageant. “It was one of the most difficult and uncomfortable experiences that I’ve ever had,” she wrote in a story for Glamour magazine. However, determined to show the world that all women, able-bodied or not, are beautiful, she continued to compete and recently placed in the top 15 in her latest Miss Carolina USA competition. She’s now focused on winning the top crown of Miss USA. Madeline informed People magazine of her grand plans, stating “Is Miss USA ready for someone in a wheelchair? I believe so… maybe they won’t get it this year, but I certainly hope that is a barrier broken soon.”

 

Pushing a shopping cart in a wheelchair is a Sisyphean task. However, those with limited mobility shopping at Publix may encounter a much easier experience, thanks to the newly redesigned shopping carts that are designed to hook onto the front of a wheelchair. 9-year-old Amaria Borders, who gets around in her sporty pink wheelchair, was overjoyed with excitement at being able to shop like others she sees in the store. Her mother, Tiffany Borders, couldn’t be happier, remarking "For a long time, I wouldn't let her push the buggy, because it was hard. Her wheelchair would always knock it around, so when we saw this buggy, it was like, 'Yes! Something just for her.’” The redesigned carts will gradually replace the existing assistive ones in store, and include lowered edges to make it easier for shoppers to deposit items and pick them out of the cart.

Becoming paralyzed from the waist down at 23 after a diving accident was a turning point in Marca Bristo's life. After seeing how patients with disabilities were treated at the hospital where she worked, she became an advocate for them, fighting for equal rights across multiple platforms. She helped co-found Access Living, a non profit organization that helps people with disabilities maintain independence, and led it for many years. She also joined other disability rights leaders to help pen the ADA, and Bill Clinton even appointed her chair of the National Council on Disability, a role she held for eight years. She succumbed to cancer at age 66 on Sunday, August 31.  

Brent Lowe is no stranger to difficult personal situations. He’s blind, and has lived for years alone with his 24-year-old son (who has cerebral palsy) and a caretaker on Abaco in the Bahamas. Recently, however, Hurricane Dorian made his life exponentially harder. After its fierce winds ripped off the roof of the house where they were hunkering down, Lowe knew he had to get himself and his son out of their house, or risk death. As soon as he stepped off his front porch he found himself chin-deep in water. He had no choice but to put his son over his shoulder and carry him to a neighbor’s house to wait out the storm. Lowe was evacuated to Nassau while his son stayed on Abaco with a family member. With his house gone, Lowe is understandably devastated. "We need a place to go," he said. "I don't know exactly what we are going to do. We need help."

 

Kevan Chandler loves traveling but his spinal muscular atrophy makes it difficult: he has never been able to walk on his own and all too many destinations around the world are not wheelchair-friendly.

Despite this, he and six friends decided to tackle the challenge of traveling together sans wheelchair through Ireland, France, and England. One person always had the 65-pound Kevan strapped to his back, so they were all able to enjoy the magnificent sights of western Europe without worrying whether or not a site would be wheelchair accessible. Kevan chronicled his travels in his book We Carry Kevan: Six Friends. Three Countries. No Wheelchair, which will be released in 2019.

New research from the CDC shows that one in four US adults have a disability that impacts their daily activities. The most common one is mobility disability, which disproportionately affects older adults ages 65 and above at a rate of 40%. The research also reveals an inverse relationship between income and disability, especially mobility. According to the CDC, “mobility disability is nearly five times as common among middle-aged (45- to 64-year old) adults living below the poverty level compared to those whose income is twice the poverty level.” The study also reported that those with vision disabilities were the least likely to have access to medical care.

People with speech disabilities could soon be speaking with their eyes. Building on a technology originally intended to help ESA astronauts, Ivo Vieira, used augmented reality to create the eye tracking technology used in EyeSpeak glasses, which helps people with speech disabilities communicate.

The EyeSpeak glasses detect eye movement across a virtual keyboard displayed on its lenses. The wearer can use the keyboard to write what will be spoken by a speaker worn on the arm. Moreover, the wearer can access content on the internet including email. All the information is overlaid on the lenses so the user can still see their environment.  

Read more about EyeSpeak on GAATES

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